Kingdom Women: Strength for your child’s sickle cell journey

Caring for a child with sickle cell disease is a journey filled with love, strength, growth, and challenges. As a mother myself who has been walking this journey for 15 years, I know you may find yourself juggling medical appointments, pain crises, and the emotional toll of watching your child suffer. It’s easy to feel overwhelmed, unseen, or isolated. Yet, in these moments, God’s Word offers hope and strength to sustain you.

SCRIPTURES TO UPLIFT AND ENCOURAGE

1. Isaiah 40:29-31
   “He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.”
   When you feel depleted, remember that God promises to renew your strength. Rest in Him and trust that He will carry you through each challenge.
2. Psalm 46:1
   “God is our refuge and strength, an ever-present help in trouble.”
   In moments of pain and uncertainty, lean on God. He is always with you, providing refuge and strength when you need it most.
3. Matthew 11:28-30
   “Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”
   Jesus invites you to exchange your burdens for His peace. Pray and release your worries to Him, trusting that He is in control.

STRATEGIES TO COPE

As you navigate the journey of caregiving, here are practical ways to lighten the load and nurture your well-being:

1. Prepack Hospital Bags
   Keep a bag ready with essentials like medications, snacks, toiletries, a change of clothes, and comforting items for your child, such as a favorite blanket or toy. Having this ready in advance will reduce stress during sudden hospital visits.
2. Have Family Discussions
   Sickle cell disease affects the entire family, not just the individual with the condition. Create space for honest conversations about how it impacts each member. Allow siblings to share their feelings and ask questions. This promotes understanding, reduces resentment, and fosters unity.
3. Share the Responsibility
   Caring for a child with sickle cell can be exhausting if one person shoulders all the responsibility. If you have a partner or family members who are willing to help, take turns managing hospital visits, administering medications, or providing emotional support. Sharing the load allows everyone to rest and recharge.
4. Take Time to Pray
   Prayer is a powerful source of strength. Set aside moments each day to pray for your child, your family, and yourself. Pour out your heart to God, and trust Him to guide you. You might also consider praying with your child or involving them in family prayers. Teaching them to trust God can help them find peace during difficult times.
5. Build a Support System
   Seek out support groups or connect with other moms who are on a similar journey. Sharing experiences and advice with others who understand can provide comfort and practical insights. Churches or community organizations may also offer resources to help you cope.
6. Practice Self-Care
   You cannot pour from an empty cup. Take time to care for yourself, even in small ways. Enjoy a cup of tea, take a short walk, or spend a few minutes reading Scripture. These moments of renewal will give you the energy to face the demands of caregiving.

SIMPLE JOYS FOR LIGHTENING THE JOURNEY

In the midst of the challenges, small joys can make a big difference. Try incorporating these into your routine:

• Celebrate Small Wins: Whether it’s a pain-free day or a successful doctor’s visit, take time to acknowledge and celebrate progress.
• Create Special Memories: Plan family activities that your child can enjoy, like movie nights or craft projects. These moments can bring joy and strengthen your bond.
• Journal Your Journey: Writing down your thoughts, prayers, and experiences can be therapeutic. It also allows you to look back and see God’s faithfulness through every season.

TRUSTING GOD

Caring for a child with sickle cell disease may not be the path you expected, but it is one filled with opportunities to experience God’s grace and strength. As you lean on Him, remember that He sees your struggles, hears your prayers, and walks with you every step of the way.

Let these words encourage you: “The Lord is close to the brokenhearted and saves those who are crushed in spirit” (Psalm 34:18). You are not alone, and God will continue to equip you with the strength, wisdom, and peace you need to care for your child.

Take heart, dear mom. You are doing an incredible job, and through Christ, you have the strength to face each day.

Be encouraged.

Grace-Anna Baugh-Osbourne has been a devoted Christian for over 25 years. A wife and mother, she is also a Jamaican educator, pastor, counselor, and mentor with a passion for empowering others.